#insurance will see it as something you don't “need”

[butts-bouncing-on-the-beltway]

I come from a family riddled with chronic and congenital health issues, which wasn't THE ONLY reason I went into healthcare and public health policy, but it **helped**

Throughout my own chronic health journey two things have struck me over and over again as part of this issue are

1) medical doctors from more traditional specialties have a history of starting out *at best* vaguely compassionate, and steadily cruising through "confused and irritated" all the way into "actively coordinating with other medical providers to medically neglect you". This means that often, the only doctors who have been both compassionate, sure they could help, and willing to keep trying for YEARS on end without hesitation or frustration, WERE CONMEN

They could afford to be all of those things. Because all they needed was for me to keep showing up at their door to pay my invoices. Meanwhile, actual doctors are accountable to licensing boards, health insurance companies, and a dozen other entities for why they're spending time and money on me, and the longer they have to do those things, the more of a problem they have.

2) there comes a day, a threshold of desperation, where you just need someone to make anything even a little bit better, and if they can do that, they might as well be your god now. Everyone's threshold is different. I hit mine in my late 20s, after over 15 years of increasingly despondant care-seeking, but I know others hit it faster or slower. When this moment comes, it is very easy for a conman to roll up, do something batshit, and manage to make you feel just better enough to be willing to try whatever batshit thing they suggest next. And it doesn't hurt that these are also the only people to act like they believe me when I described the things that were happening, whereas a lot of doctors and nurses I've seen just nod and smile and cruise past it, like the ER doctor the other day who was repeatedly informed that I was having an episode of an orthostatic heart condition and A) didn't run a tilt table, B) didn't even bother to take my heart rate in more than one position, C) DIDN'T EVALUATE MY **HEART** AT ALL BECAUSE HE FOCUSED ON MY NECK AND BRAIN WHERE PAIN WAS MANIFESTING INSTEAD OF MY HEART WHICH HE WAS REPEATEDLY INFORMED WAS CAUSING THE PAIN, and D) didn't treat my dehydration AT ALL despite this being a severe flag for further episodes, and further episodes being a high head-trauma risk for me.

The cons who have "treated" me all ran the kinds of tests that my future doctors simply REFUSE to order, but are happy to hear the results from when I pass them on! Even helped me get them paid for when I couldn't afford things like genetic counseling or complex blood tests. They have all been *weirdly helpful* even when I can see how much bullshit they're also saying.

But it's taken me having multiple degrees in related specialties to be able to parse (MOSTLY) the bullshit from the valuable ideas. And the whole point of having doctors is that not everyone should HAVE to be a medical professional just to get medical care!

I don't know that I have solutions here or especially helpful observations, but I think part of the fear I've been developing about all this is "the medical system is failing so many people so often that even KNOWING someone is a quack isn't enough to stop patients from seeing them if they're a quack who can produce what looks like results"

It feels like the line between "alternative medicine scams" and legit medical info is crumbling apart and it scares the hell out of me.

I was on youtube looking up some stuff for my friend, to see what unreliable stuff they might have to watch out for, and there are a lot of scams being pushed by people who are using academic-sounding terminology and appear to the uneducated outsider (me) to actually have an understanding of the science. A lot of these people either are medical doctors or are posing as medical doctors using a sketchy bullshit degree from some obscure illegitimate institution.

What's more, there's a lot of content creators enabling this by building their channels around vague, essentially benign claims that are too unspecific to be labeled misinformation, like "Avoiding these foods could help with this condition!"

Like yeah, in the broadest sense, maybe eating less "refined sugars" could make you feel better, but once you watch this video, the algorithm immediately starts pushing other videos with similar titles making similar claims, except those claims are "Refined sugars cause disabilities and cancer," and that will bring you to "Sugar is a drug more addictive than cocaine and you can detox by eating only raw beef and butter."

I got recommended a Jordan Peterson video within 3 clicks of simply putting the name of a chronic illness into youtube search.

[the-fandom-crossroads]

Everyone is suggesting stocking up on morning after pills in case they get banned. And Yes! do that! But also if you do not plan to bare a child in the next few years look into long term birth controls.

Even Missouri never banned long term birth controls. They just make you take a pregnancy test before being prescribed it. So as long as you are not currently pregnant and want to avoid having a child during the next 4 years get on long term birth control.

Call Planned Parenthood today because the wait list is usually a month out for the earliest appointment. If they plan to attack abortion and birth control options day one you want to get prescribed them before jan. In case they make it incredibly hard to get prescribed it. But one doctor visit and they can prescribe you the Depo shot for a year. Depo is the least invasive option. If you go for one of the inserts those last years on their own. They just have the risk of slipping and you not know it until after you've become pregnant.

Depo; lasts 3 months, stops or lightens most periods, and income based PP charge 0-20 dollars for low income people to get it every 3 months. You qualify for low income even/especially without insurance. At full price it's 70-90 dollars every 3 months. but if you make less than 30k a year you qualify as low income.

TLDR: Long term birth controls are less likely to be banned and at least will take longer to ban compared to abortion pills. Conservatives don't want to "kill the embryo" which is what they see morning after pills as doing. Long term birth controls stop the embryo from even forming. Look into the Depo or other options before Jan and get prescribed it so you are at least set for the next year.

[daisywords]

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[shirogane-oushirou]

no promises anymoooooreeeee i'll appear online when i appear online 😭 every time i say "ooh i think life is almost done being overwhelming!" it. becomes even more overwhelming in the dumbest ways. all i can manage rn when i'm not stressing myself into a shut-down state is staring at the wall while listening to youtube essays + mindlessly crocheting.

i might queue up ppls art and fics w/o commentary in the tags... i want other ppl to see what all of my cool friends have made, but i genuinely can't think right now with this monstrous brain fog. i'm really sorry, just. yeah. maybe i'll think of some way to make it up later!!! once the dust has settled!!!! but until then i wuv u and miss u. smiles.

[venting in tags including familial manipulation and ableism. i. didn't mean to write all of that, thiss was originally going to be a main blog post but. aaaaaAAAAAA!!!!!

also no need for replies or anything, i'd turn them off for just the one post if i could kjsndkn, i just needed to get things out and go eep jsjndsfdn ok bye bye bye bye!!!!]

[apricotbuncakes]

I see people in the comments are confused about this so allow me, a trans masc with chest dysphoria, to explain a bit more.

Several of my family members have had different kinds of cancer with varying symptoms, severities, and complications. So I knew how horrible it was to have, even if when I was younger I didn't fully get what was happening.

That said, yes I have 'fantasized' about getting breast cancer. It's less of the romanticizing that people tend to imagine and more 'I didn't have another word for imagining a reality where the end result is something I really want/need'. It's not that I wanted cancer and what came with it. It's that I wanted top surgery, and as a 14 year old without trans friendly insurance and no parental consent, there was no way I was getting anything beyond talk therapy for my gender dysphoria until I was the age of majority.

And that's exactly what happened. I finally got HRT at 19. But even as an adult, I can't access top surgery through insurance until I'm 21. So I'm still stuck in this weird limbo of 'if I had a life-threatening disease, maybe insurance would actually help me find someone qualified for these surgeries' and 'I don't want a life threatening disease in order to get the care I need'.

If you want to help actually, you can donate to my GoFundMe.

Gofundme

We ask your questions so you don’t have to! Submit your questions to have them posted anonymously as polls.

[dont-open-dead-inside-25]

i like to think of myself who's relatively normal about holding grudges and the like but. i'm also still incredibly upset about something that happened in... february, i'd wager. especially given that it's relatively minor and i don't think anyone except for me is physically capable of taking seriously

[autistic-shaiapouf]

Beginning to really wonder how much of my financial concern is manufactured and handed to me as opposed to something I'm genuinely concerned by

[born-to-lose]

Search history full of "how to do therapy by yourself" ahahaha

[lungsandlips]

Kade was starting to get a little antsy at the prodding but he wasn't blaming Chloe for it. She had every right to be curious, to worry about him. Last night's episode centered around her and it would make sense to any logical person that she would blame herself even if it wasn't her fault. And it wasn't. "I've been neglecting things for awhile. Even before you and I..." How did he describe the change between her winning a drinking contest between the two of them and what had happened in the bathtub? They weren't dating, even though he would absolutely consider her his girlfriend if he was given permission. But they were something, right? "Seeing my therapist might have helped..." He'd neglected that too, thinking if he just buried himself in work that he'd be too busy for his mind to catch up with him. Unfortunately that seemed to play a big part in his downfall.

"You're not a loser," he argued. "I think we both have a lot of shit we deal with inside of us that comes from different places. I know you don't feel that way but I let the tiny worry that you might not want anything to do with me because of who I am and what I deal with be louder than the voice that knows better." That part of him knew she cared, couldn't deny it. Couldn't let her deny it either, really. It was too obvious. "Can we talk about that stuff later?" If there needed to be more conversation about it, anyway. Kade just needed a break. "If it was an expense to begin with I'm sure we had insurance on it. Shouldn't be hard to get you a new one today." He could see that the conversation was bothering her but he wasn't letting it go just yet. "Hey - this isn't the same as me getting you a gift. Strictly from a business standpoint, you need a new phone. My company pays for that. That's not even really just me. The whole Conroy family operates out of the same company. Makes it easier for us. It's a business expense. Easy to fix. Had to replace my own three times last year."

"Spare sheets are in the linen closet in the hall. I'll help you make the bed. Not that you would know," he teased. "But the spare room is freezing. If we stay in my room I'll let you turn on the floors."

That image of hime will never leave her mind. She knows it's a bold thing to say, but she knows in her gut, it will stay with her. Letting out a small sigh, she hated herself for playing with his mind and emotions. "In what way? If you were to be honest now, what would you say about where you were mentally?" She knew Grace said he couldn't be pushed, but she needed to try. "And would this have built up the way it did if you were seeing your therapist more regularly?" She didn't want to scold him, but she wanted to support him, which means scheduling therapy appointments, both as his assistant and his girlfriend- whoa. The subtlety that thought came to her stunned her for a second, abort, abort, abort. Looking back at him forcefully focusing on him to deter her own inner spiral.

Smiling and letting out a soft chuckle at the thought of slapping him across the face, her facial expression soured the more he divulged his inner thoughts. "Wow, those thoughts either really hate me or are out to get you." She tried to joke. She could see he was embarrassed and her heart hurt for him because he had no reason for it. "You know I don't feel that way right?" She knew he admitted it was a stupid thought, but she wanted him to hear it from her. "Especially when I'm not 'dealing' with you. If anything, you're 'dealing' with me. You have a legitimate diagnosis to back up your stuff, I'm just... a naive and gullible idiot." Chuckling at her own expense. "I don't know," She said awkwardly disliking any talk around money, specifically someone else buying her anything. "It is an expense, technically, but I can get my own phone. You pay be very well to be able to afford a new one." She felt so awkward as if she had insects crawling underneath her skin, "It's fine, I can buy it." She said quickly, desperate for this conversation to be over, "I'll buy it later, or tomorrow, or whenever." She nodded. "You know, I really like getting back into bed idea. Where are your spare sheets? I can go make the bed, or we can use that guest room I've been neglecting."

[poptartmochi]

it is the dreadposting hours ur honor

[thisismyworldyeah]

.

[vvelegrin]

man it just feels kind of... i don't know. mean that with everything lately we're adding mystery joint pain, most persistently in my hands, to the pile.

like come on. come on. i can't even have this?!

[qhazomb]

so in addition to the massive ringworm rashes on my lower legs, now some completely different mystery rashes are showing up here and there on me, too.

too bad i can't see a dermatologist without completely losing my health insurance 🙃🙃🙃

[jimmythejiver]

So Ang aka Recapkid aka Handsome Hugs aka whatever the fuck they calling themselves now* poisoning the discourse while doing exactly in rl what his art portrayed (allegedly) is why we don't get to have nice shit in ZADR fandom anymore, huh.

*My knowledge of Rek/Recapkid saga ended initially when they first made their first dramatic exit in fandom. Everything after is what I had to track down to verify tonight.

[what-wait-why]

if i were not on T I'd be on my period right now

[medicinemane]

I don't know... just the utter insanity of being like "I don't trust the government" only to put your full faith in the government cause you've decided that this punitive law is one you like and could totally never be used in an inappropriate way

Never trust the government man

Government needs to be forced to have full transparency and accountability and have a boot kept on it's neck at all times to make sure it's doing what we need it to... and we're not there yet, not even close. DOD can't even pass an audit man, and so many of the governmental systems as so clearly just kind of broken

So why on earth would you ever trust some new law to only be used in positive ways and not as a tool of suppression?

And part of it is about looking at laws, looking at what they say and do, looking at their scope. Like yeah, I'm pro right to repair laws because they mostly say companies can't stop me from fixing my own shit and need to make parts available (which they demonstrably don't do otherwise, which is the only reason I even want a law about it)

But like... there's a bit of a difference between the scope of a right to repair bill vs something on surveillance, or banning something like tiktok, or making it so police can arrest you for something new... never trust that stuff's going to be applied how they say it will, assume they've slipped massive overreach in the fine print, and assume that even if it's technically the most restrained bill that the feds might ignore that and use it as an excuse to trample all over your rights despite technically not being allowed to

Doesn't matter if the cop technically isn't supposed to arrest you for it, we see cases all the time where cops do shit they're not supposed to do and go after people not doing anything wrong